With recent advances, treatment for chronic myeloid leukemia (CML) can often slow or stop the progression of the disease. Today, CML may be treated similarly to a chronic long-term condition. The goal is for people living with CML to have a life expectancy that's as close to normal as possible.
Effective treatment can improve your quality of life and long-term outlook. If you receive treatment during the chronic phase of CML, your chances of obtaining remission are good. Even so, managing this chronic condition can pose challenges.
Read on to learn more about support resources that may help you cope with the challenges of living with CML.
If you've been diagnosed with CML, it's important to connect with healthcare professionals who have specialized knowledge about treating the condition.
Ask your primary care doctor or community cancer center for a referral to a leukemia specialist. You can also look for leukemia specialists in your state using online databases operated by the American Society of Clinical Oncology and American Society of Hematology.
Several different factors can affect your out-of-pocket costs for treatment. The costs of your treatment depend on:
If you're finding it difficult to manage the costs of your care, it might help to:
You can find more tips and resources for managing the costs of care through these organizations:
It can be stressful to live with a chronic condition, such as CML. If you've been experiencing frequent feelings of stress, anxiety, anger, or grief, let your treatment team know. They may refer you to a psychologist or other mental health specialist for support.
You might also find it helpful to connect with a trained social worker through Cancer Care's Hopeline. To access this service, call 800-813-4673 or email firstname.lastname@example.org.
Connecting with other people who have been diagnosed with cancer might also help you cope with the social and emotional challenges of CML. To connect with others:
Several nonprofit and governmental organizations have developed online resources for people living with CML.
To find information about this condition, visit these resources:
You can also connect with information specialists at the Leukemia & Lymphoma Society by calling 800-955-4572. If you prefer, you can fill out an online email form or use their online chat service.
Your treatment team or community cancer center may also be able to share or recommend books, websites, or other resources for people with CML.
If you're finding it difficult to manage the physical, emotional, or financial effects of living with CML, let your treatment team know. They may be able to adjust your treatment plan and connect you to local resources. Many cancer organizations also offer support online, by email, or by phone.